As most of you know, one of the Gastric Cancer Fund’s primary research objectives is to improve prevention, early detection and treatment of gastric cancer. Fundamental to any gastric cancer research project is building a database that houses all pertinent information regarding gastric cancer patients. Currently, no such comprehensive clinical database exists that could be used to facilitate research in gastric cancer. After almost two years of building, we are proud to announce that the Gastric Cancer Registry is now live and collecting patient data!
This registry is accessible online here: Gastric Cancer Registry Login. The secure HIPAA compliant registry database collects and stores data regarding demographics, medical history, genetic testing, details regarding an individual’s gastric cancer (histology, stage and grade of tumor, treatment and surgery), family history and epidemiologic data. This data is obtained through a user-friendly questionnaire that has been developed specifically for this unique population. The data will be used to explore a possible causal relationship between lifestyle, environment and personal risk factors in the development of gastric cancer.
The registry staff will work with participants to collect detailed medical records, biosamples (blood containing germline DNA) and tumor tissue samples. This will enable researchers to conduct deeper analyses of genetic, environmental, geographic, ethnic, occupational and other differences that may provide clues pointing to risk factors. The data will also be valuable in shaping the general direction of projects geared towards early detection, educational outreach and other areas of interest to individuals with gastric cancer. And, as many of you may know, the gastric cancer tissue and blood DNA samples collected will help fuel our second research objective, which is to conduct state-of-the-art genomic analysis. One such project is already underway, helping scientists determine the “digital code” of gastric cancer by conducting large-scale DNA sequencing of gastric cancer genomes and identifying errors in the DNA code that contribute to cancer prognosis.
So we are truly at a landmark in our organization’s history. In order to make this registry a viable tool and motivating resource for researchers around the country, we need your help to fill it up with relevant data. That is a specific call to action for all gastric cancer patients to register your data now at: Gastric Cancer Registry Login. The more data we get in the system, the more powerful the tool becomes. Support people, or folks that have lost loved ones to this terrible disease, please work to get your gastric cancer patient’s data in the system. It can still help save others’ lives. If you have any questions regarding the registry, please contact Research Assistant for the Gastric Cancer Registry, Liz Schackmann, at (650) 724-9948 or firstname.lastname@example.org.
The Gastric Cancer Registry was created with the generosity of Diane and Ronald Weintraub, in memory of their beloved daughter Beth Weintraub Schoenfeld.